About Me

About Me

So who am I and why this page?

I am Niki, obviously, and I was diagnosed with Multiple Sclerosis on 6th March 2003 when I was 25 years old.  Since then my life has been one long challenge after another!

When I was first diagnosed I had only been in the Ambulance Service for 2 years and was in the middle of my application to become a Paramedic.  In fact 2 days later I took and passed my entrance exams.  I didn't get the best results but bearing in mind the news I had just been given thought I did bloomin well!

Initially I went through all the feelings of depression, why me and what does life hold in store.  But no one was able to answer these questions.  So instead of dwelling on what I couldn't control I gave myself something to focus on, a challenge every year.  That first year was passing my Paramedic course which I did and a job I still love today!  Since then I have used the challenges as a focus point when life gets tough and also as a reason to do things I never though I woudl be able or get the chance to do.  I have climbed mountains, walked miles, got married, had 2 amazing children and conquered fears.

During the last 10 years I have tried medications to try and keep the symptoms and relapses at bay but last year I started on Tysabri which I can confess has changed my life!  Over the first 6 to 7 months of taking it I went from being in constant pain in my hands and legs which medication was reducing but not taking away to having reduced pains but the medication stops the pain for several hours.  I suffered from fatigue which really kicked in in the afternoon to now being able to do a full day without any cat naps at all!  I truly feel like a different person.

So now I have my life back and it has hit my 10th Anniversary, I decided to do a year of fundraising for the MS Society who have helped tremendously during these 10 years.  They have given me so much help in the form of information and advice on dealing with my condition.

As well as my fundraising year I will be trying to keep a blog of fun stuff, troubling stuff and honest feelings about how I am doing and my condition is affecting me.  I am often asked about my condition and all I can tell people is about how it affects me but MS affects people in many different ways.  But I hope that I can give people a more informed outlook about MS and its affects.

If anyone has any questions or comments please feel free to get in touch and I will happily answer questions.